Two years ago I had a nervous
breakdown. Just before I did so I had been part of a new Council initiative. My
brief concerned Mental Health in the U25 group. At the end of last year I came
across what I had written and scrubbed the whole thing. I, too, have come to
accept I shall never recover; so a couple of months ago I wrote this. I’ve
divided it in two and am posting the conclusions & possible solutions
first. Because it’s positive. It might even open a dialogue?
When I began
to look into Mental Health in the 18 - 25 age group it was almost immediately apparent that there is a huge black hole.
Students; middle class people living with parents; and the reasonably
well-educated; are socially placed to access and receive help from a number of organizations, including: 5th Sector programmes; local Council initiatives;
University support groups; private charities.
There is very little that single parents with
Mental Health problems have access to if they fall within the same age-range. The
problems of many of these premature parents are compounded by the high numbers
whose lack of education is due to learning difficulties.
I compiled a folder of personal anecdotes
garnered both from my building (16 flats where at least one occupant in each
flat has mental problems and is on medication), from homeless people in
doorways, from interns at work, from recovery centres, and from people on
public transport – if not directly on the Clapham Bus.
It is from
both my own experiences and the pooled
resources of many Brighton & Hove residents that I have learnt of the
tragic and ongoing ways in which failure to provide adequate mental health
care - across the board - contributes to our homeless problems,
societal imbalances and the problems of youth brought up with parents who are
unable to deal with their own lives, let alone achieve the confidence or
competency to guide their children.
All across
the country – and in conjunction with other countries – skill-sharing,
inter-disciplinary cooperation, and problem-solving has begun to flourish.
Thus, from inside the UK to all corners of the world there are courses, initiatives,
information, and proven tactics which could benefit not just those with
existing mental problems but safeguard others from mental ill-health in
Britain.
There are volunteers from all walks of life,
from different countries and cultures, and many who have training, experience –
either theoretical or lived - with mental health. There is little point in
waiting for more funding, or making plans for what to do once one has access to
any.
NHS is
incompetent and their Mental Health programme is shamefully inadequate. Given this current reality I think we have to
accept that nothing
It would seem to me that, if we all came
together and opened lines of communication between health carers, professionals
and consumers; if we could provide the same level of support and health to all
; if we were in constant dialogue with those in other countries who had put in
place structures which worked; and if we harnessed the experience of those
people who have lived or who continue to live with mental illness; AND if we
could work in conjunction with the health carers – picking up the slack in some
of those dangerous black holes; it CAN work. I’ve seen it happen.
Once
started, for example, we might be able to embark upon the same kind of
consciousness raising and national education which has turned Australia around
from failing to deal with this aspect of society, to becoming leaders in many of the schemes
that have been put in place. (Something
several B & H mental health workers mentioned to me independently.)
I know that
it makes sense that when a treatment has proved effective, mental health
workers in the 5th sector spend money to train people, and pass on
the training in order to reach a large
number of people.
But one size
definitely does NOT fit all, and a programme that will work with one person can
be a bad fit for another: depending on their illness, their vulnerability and
their individualism.
However,
ever since I became ill the treatment du
jour has been Mindfulness. From the NHS
itself to recovery centres, to independent charities: if you have a mental
illness you do Mindfulness.
Now I’m Patient
A and I’m bi-polar. Patient B hadn’t been able to walk outside his apartment
in months. Both of us, through different
agencies, were offered only mindfulness therapy to help with the kinds of
problems for which mindfulness AND group
therapy was anathema. We were both led to believe that if we did NOT take
up the offer we’d get no further help.
Perhaps,
across the city, our very healthy 5th Sector could result in more diverse
kinds of help; which would reach out to the very diverse population of this
city of artists and eccentrics and the kinds of people who slip through cracks?
If some
sectors elected to train in one particular therapy – such as the very effective
Mindfulness – which did prove to have a good success rate then, if we all
worked in concert, rather than isolation, that provides the opportunity for
another group to train in another
conventional programme. While a third goes for equally effective
non-traditional programmes. This way a
broader spectrum of people can be helped: IF this information is made available
across the City to ALL health carers. Help can not only be delivered speedily
but – as importantly – relevantly.
Non-conventional
therapies don’t begin and end with acupuncture and homeopathy. Laughter Yoga proved to be one of our most
effective tools – and it’s something Brits could indeed benefit from! We also did Patch Adams courses; and those
with lived experience were invaluable in forming discussion groups, training as
facilitators, conducting support groups, mediation, visiting schools, and
providing support for those who wanted to start their own support groups.
Eventually
these and many other patient-initiated groups were consulted about proposed
changes to the State health provider. Their opinions were solicited alongside
those of mental health practitioners. This input helped turn the whole system
around.
Our problems
with Mental Health in Brighton are becoming endemic: in the Council block in
which I live, at least one person in each of the 16 households is on permanent
medication. All of us are survivors of suicide and self-harm events. Four of the mothers of small babes are Under
25; and they have no hope that their lives will ever improve.
Because not once has anyone ever said
to any of them that word I mentioned earlier: “recovery”.
They’ll be
classed mentally ill for the rest of their lives – and they will be. They take
their pills, try out someone else’s, compare symptoms and effects…because they
have had to accept that medication is the only thing that gets them through
each day. And will do so all their lives.
Already one
of them has been told by her Health Worker that her 3 year old is ADHD. She now accepts that, too.
This is
outrageous, inefficient, gives no thought to recovery, wastes millions of
pounds, and has no visible effect.
Being brought up by a parent who considers her
life futile, who has been told she must go through her life as a Mental
Patient, and who has been given no
support, often results in the child itself being diagnosed: Like Mum, like
child. The situation is being perpetuated.
If there is
no money available to put effective Mental Health care in reach of those who
need it, then we have to change our thinking.
Stop relying on short grants to establish short projects with limited
time-bases. Stop unanimously accepting
NHS projects without consultation and discussion with care-givers, patients and
families.
We need
desperately to stop looking upon Mental Health patients as ‘those we have to
help’ but instead allow them to help themselves. We need actively to search out those with
lived experience to complement those with theoretic knowledge if we are seriously
looking to improve our game. We must get
used to looking at people with mental health issues not, as I urged previously,
as ‘broken’ people but as rich resources to help with the delivery of a
workable solution to coping with these issues.
And, for
god’s sake, we need to get over the Middle-class morality which ensures that
the moment a patient uses ‘foul language’ skirts are drawn tighter, lips purse,
and lectures(! ) or complete abandonment result.
Linguistically,
there’s no difference between a lazy speaker who says ‘basically’ or ‘literally’
or “silo” ten times in each sentence, and one who says ‘fuck’ or ‘cunt’ with
the same frequency.
If a
care-giver is unaware of the difference between verbal abuse and linguistic
habits that have formed over a person’s life-time then, frankly, they should
not be dealing with people who are enduring
mental health problems. We are not at our best at these times.
Anyone who
is incapable of seeing past the ‘obscenity’ to a suffering person who is
sharing the contents of their minds in the only language they have, is too
self-absorbed ever to be able to offer any real help or insight to a suffering
human being from a different class.
At the time
of (re)writing the world is in trouble: with
a new regime in another country, we are
dealing with fear, distress and the fact that all our cherished rights –
some of which have been over 2,000 years in the making – are in danger of being
rolled back. We all need our wits about us.
One way of
resistance is to ensure that we don’t go down the same path of divisiveness,
misunderstanding, and drawing up of battle lines. Now, more than at any other time, we need to
work in a spirit of co-operation and sharing; we need to bring people in out of
the cold, we need to take responsibility and… we need our sanity .
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